
I bought this book last week.
The title of the book is I WANT EUTHANASIA and it is written by Tang Shiu-bun, a patient of locked-in syndrome. Unlike Diving Bell and Butterfly by Jean Dominique Bauby, this book is extremely depressing.
In 1991, Tang was training as a PE teacher. After passing all his exams, and while practising backflips on a trampoline, he fell in an awkward position and has been paralysed since. Ironically, he received an offer from a school several days after his accident.
Tang woke up 1 day after the accident and realised that he has lost all control to his body from neck down, yet his brain, sight, and hearing were all functioning perfectly. He tried to kill himself by fasting, refusing medication, and even attempted to cut his tongue by biting hard, but nothing worked.
Eventually in 2003 he got fed up (having been motionless for 12 years – imagine that!) and composed a letter asking the then Chief Executive of HK Mr Tung to allow him to die with dignity by euthanasia. The letter created a media frenzy, and since then his treatments has been improved. He was invited to visit Disneyland, as well as to attend a talk given by Professor Stephen Hawking in 2006.
The cover of this book is the only view Tang has since 1991 – the ceiling in his hospital room. How interesting!
So after all the imrpovements and media attention, etc etc one would think that his book was about seeing life in a more positive light after receiving help since 2003. No. Tang’s determination to receive euthanisa has not faltered. The book begins with introductions written by 30 odd friends, doctors, and family members, and each of them are equally touching and meaningful.
I almost cried when I read that one night a cockroach landed on Tang’s face and he was completely freaked out. But there was nothing he could do to get rid of it. He felt so sorry for himself because he was defenceless even to a small insect. *Sigh*
This is a really depressing book, but a very very good read, if you understand Chinese that is!
I hope I will never find out how it feels to be ‘locked-in’. But in the extremely unfortunate event that I became paralysed, I would definitely go for euthanasia.
Chinese website for those who are interested.
More info in English.